Raising a rare girl : a memoir

Book
Published 2020
Item Details
Summary:

"The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight, she is attending standard public school classes. This is the story of her family's journey"-- Provided by publisher.

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